RARE Drug Development Symposium 2024
RARE Drug Development Symposium 2024
Dec 17, 2024
globalgenes.org
RARE Health Equity Forum
RARE Health Equity Forum
Sep 11, 2024
globalgenes.org
Thank You for your steadfast support of Global Genes in 2024! | Global Genes | Facebook
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Thank You for your steadfast support of Global Genes in 2024! …
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15 reactions | It is International Day of the Zebra AND Rare Disease...
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15 reactions | It is International Day of the Zebra AND Rare Disease...
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There’s No Place Like Hope! 🪄🌈 Join Global Genes for an inspiring week in Kansas City, MO from Sept. 25th - 28th to connect, collaborate, and celebrate what it means to be a RARE advocate. Join others to forge meaningful connections, create future collaboration opportunities, and build a community founded on research, advocacy, and HOPE! 💙 Now’s the time to secure your registration HERE: https://web.cvent.com/event/e3a2427c-d9f7-4e73-a08c-01ec43a3981b/regProcessStep1/?utm_source=fb&utm_medium
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There’s No Place Like Hope! 🪄🌈 Join Global Genes for an inspiring wee…
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🚨 BIG NEWS 🚨 Global Genes is turning 16 next week! That means since 2008, we’ve dedicated ourselves to making significant awareness efforts, connections, and successes within the rare disease community 🎉 To celebrate, we’ve asked those who have worked alongside Global Genes to talk about memories, experiences, and the impact that Global Genes has had on their lives. Nicole Boice, Founder and Chief Mission Officer, sat down to reflect on what Global Genes is to her in a series of short videos.
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🚨 BIG NEWS 🚨 Global Genes is turning 16 next week! That means since 2…
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15 reactions | Our Dir. of Community Engagement, Daniel Defabio...
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15 reactions | Our Dir. of Community Engagement, Daniel Defabio...
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We spoke with Elizabeth Coulter, Louie's HUWE about the fantastic …
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Today’s #ZebraTale is by Amanda Proctor, President & CEO Cauda E…
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5 comments | We are about to kick off the first sessions of the RARE...
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1.2K views | Vicki Arteaga shares her #zebratale with us in an...
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5 comments | We asked RARE Advocacy Summit attendees to “b…
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We spoke with Annabel Corbett about Wiedemann-Steiner syndro…
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95% of rare diseases lack an FDA approved treatment, and it takes o…
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12 reactions | Gulin Kayserilli shares her #zebratale with us and her wis…
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Unlocking the secrets of Baby Shark genes😂 Genetically cute and proud🧬…
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TallGenes on TikTok
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Meet Frances Pimental!  Her #zebratale is one of resilience and...
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