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Functionalhand on Instagram: "Mila has a rare genetic disorder called STXBP1. She and her mom are traveling to Panama for stem cell therapy. Follow her journey and updates at milas_crew. #STXBP1 #RareDiseaseAwareness #StemCellJourney #SpecialNeedsFamily #MilaStrong 🤍 #functionalhand.com #occupationaltherapist #physicaltherapy"
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Le plus beau cadeau de Noël : il marche enfin !
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Johnson’s on Instagram: "If you’ve never heard of STXBP1… this is your sign to learn 🧬 STXBP1 is a rare genetic neurological disorder that affects how the brain communicates with the body. It often impacts movement, development, and can cause seizures. For kids like Mila, nothing comes automatically. Every movement takes effort. Every milestone takes time, repetition, and a lot of therapy. But STXBP1 doesn’t define who she is. She feels joy. She recognizes love. She tries every single da
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Johnson’s on Instagram: "STXBP1 milestones look different — and that’s okay. Milestones don’t come easy, but they come.🥹2025 has been the best year for Mila ❤️#reels #shorts #viral #love #instagram"
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Andrei și pufuletele = fericire maxima pe zi ce trece Andrei ne surprinde Andrei poate dar trebuie ajutat iar tu o poți face prin simpla complectare a formularului 230 prin care redirecționezi 3.5% din impozitul pe anul 2025 către asociația lui Andrei , Asociația ANDREI STXBP1, CUI 49590885 https://formular230.ro/andrei-stxbp1 #celulestemchina #celulestemmezenchimale #STXBP1 #sindrom
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Andrei și pufuletele = fericire maxima pe zi ce trece Andrei ne s…
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Affection from Logan and Thomas is few and far between. So when it happens on their terms, it feels huge. Tonight Logan reached for his dad… a couple hugs, a little cheek pinches, and just like that our hearts melted. Moments like this are rare and monumental. These are the moments we crave. The ones we hold onto. The ones that remind us that connection is there, even if it shows up differently. I only wish there were more of them. I pray they keep coming💙 #specialneeds #reels #stxbp1 #momsofti
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